Growing up with Down's - Children and Families Bill

I have just had the privilege, and it was indeed a privilege, to watch a programme aired on BBC Three entitled ‘Growing up Down’s’, about a group of young adults with Down’s syndrome, and other learning disabilities, who were encouraged to form a theatre group and went on to perform a convincing performance of Shakepeare's Hamlet at theatres all around the country.

The programme was filmed by the brother of one of the key figures, and was recorded in a sensitive compassionate way, illustrating without illiciting the sympathy vote, that even those in our society with learning difficulties have the same fears, emotions and aspirations as those of us who do not have to live with these challenges on a daily basis.

It was also a salutory lesson for the rest of us who sail through life largely untouched by long term disability, demonstrating that where there is the will anything can be achieved. We would all do well to remember that. I found it inspirational, and without being in the least bit patronising, truly amazing to see their confidence grow in leaps and bounds.

Quite by chance I later tuned into the third reading of the Children and Families Bill as peers in the House of Lords considered its merits and several amendments; disappointingly to a virtually empty house once again.

Of particular significance was the proposition that the health and wellbeing of 'parent carers' of disabled children is assured, with appropriate support available. The amendment has gained cross party support, and several of those present reiterated the point that there should be formal recognition of the many sacrifices made by those caring for children with disabilities, and the impact of the toll this takes on the health of the carers.

It was interesting to note that in expressing approval or disapproval of the amendment, the wording used in the chamber was 'content' or 'not content'.

Also of significance is the £40m. put aside by Michael Gove, the Secretary of State, to aid the transition of those in foster care through into adulthood. Described as the most important change for a generation, there is now acknowledgement that support beyond the age of 18 will help to ensure a smoother transition for these youngsters. Once on the statute books, Local Authorities will be required, by law, to provide financial assistance, advice and support until children in care reach the age of 21.

Thank goodness that for once there is some funding attached to this.

We have over 500 children in care across the county and I am delighted to report that, for once, Somerset County Council is one step ahead of the game. The council has already set up its own Leaving Care Council to provide this vital support at such an important time in a young person's life. My continued involvement in this area of SCC's activities remains one of the most rewarding aspects of being an elected member.